One of a Kind: My SDS Story

Being different doesn't make you less. Sometimes, it makes your story one of a kind.Meet Oriah, a bright, imaginative child who loves to laugh, play, dream big, and spend time with friends. Oriah also lives with Shwachman-Diamond Syndrome (SDS), a rare genetic condition that makes her body work a little differently.In One of a Kind: My SDS Story, young readers are introduced to SDS through warm, child-friendly explanations and colorful illustrations. Oriah describes her bone marrow as a busy "factory" that makes important helper cells and her pancreas as a "kitchen" that helps her body use food for energy. Along the way, children learn why someone with SDS may need blood tests, doctor visits, medicine, enzymes, extra rest, or other medical care.But this story is about much more than a diagnosis.Oriah reminds readers that every child with SDS is different-and that children facing medical challenges still have dreams, talents, friendships, feelings, and incredible strength. Through moments of uncertainty, courage, frustration, hope, and joy, she discovers that SDS is only one part of who she is.Inspired by author Oriah Douglass's own experience living with Shwachman-Diamond Syndrome, this heartfelt illustrated book offers reassurance to children with SDS and other chronic or rare conditions while helping siblings, classmates, families, and caregivers better understand their experiences.A compassionate story about rare disease awareness, resilience, self-esteem, inclusion, and celebrating what makes every child unique.You are more than a diagnosis. You are strong. You are special. You are one of a kind.